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Klippel-Trenaunay Syndrome (KTS)
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Klippel-Trenaunay Syndrome (KTS) (18 records)
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1 | NCT02332655 | Active, not recruiting | Cannabidiol Expanded Access Study in Medically Refractory Sturge-Weber Syndrome |
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Interventional | Phase 1 Phase 2 |
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Other / Industry |
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10 | All | 1 Month to 45 Years (Child, Adult) | NCT02332655 | IRB00029264 | December 2014 | June 2019 | June 2019 | January 7, 2015 | March 1, 2018 |
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2 | NCT03047980 | Recruiting | Trial of Sirolimus for Cognitive Impairment in Sturge-Weber Syndrome |
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Interventional | Phase 2 Phase 3 |
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Other / Industry / NIH |
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10 | All | 3 Years to 31 Years (Child, Adult) | NCT03047980 | IRB00079722 2U54NS065705 BVMC6209 |
January 2017 | March 1, 2019 | September 1, 2019 | February 9, 2017 | March 7, 2018 |
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3 | NCT01425944 | Recruiting | Innovative Approaches to Gauge Progression of Sturge-Weber Syndrome |
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Observational |
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Other / NIH |
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600 | All | 1 Month and older (Child, Adult, Senior) | NCT01425944 | NA_00038014 U54NS065705-02 BVMC6202 BVMC6208 |
September 2010 | July 2020 | July 2020 | August 30, 2011 | September 12, 2017 |
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4 | NCT01997255 | Withdrawn | Adjunctive Everolimus (RAD 001) Therapy for Epilepsy in Children With Sturge-Weber Syndrome (SWS) |
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Interventional | Phase 2 |
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Other / Industry |
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0 | All | 2 Years to 18 Years (Child, Adult) | NCT01997255 | H-33251 CRAD001MUS214T |
April 2014 | April 2016 | April 2016 | November 28, 2013 | May 5, 2016 |
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5 | NCT02080624 | Completed | Efficacy and Safety Study of Topical Rapamycin Associated With Pulsed Dye Laser in Patients With Sturge-Weber Syndrome |
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Interventional | Phase 2 |
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Other |
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23 | All | 16 Years to 65 Years (Child, Adult) | NCT02080624 | RSW2011 2010-024078-20 |
RSW | January 2011 | September 2012 | December 2012 | March 6, 2014 | March 6, 2014 |
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6 | NCT00610402 | Completed | Incidence of Ocular Antibodies in Patients With Sturge - Weber Syndrome (SWS) |
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Observational |
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Other |
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57 | All | Child, Adult, Senior | NCT00610402 | NIH-LAMMP-2006-5691 | July 2007 | July 2007 | June 2008 | February 8, 2008 | February 10, 2017 |
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7 | NCT01533376 | Recruiting | Treatment of Port-wine Mark in Sturge-Weber Syndrome Using Topical Timolol |
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Interventional | Phase 1 |
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Other |
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10 | All | 2 Years to 10 Years (Child) | NCT01533376 | AVL-SWS-TT4PWM | February 2012 | December 2017 | June 2018 | February 15, 2012 | May 15, 2017 |
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8 | NCT00639730 | Completed | Use of the Atkins Diet for Children With Sturge Weber Syndrome |
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Interventional | Phase 1 |
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Other |
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5 | All | 2 Years to 18 Years (Child, Adult) | NCT00639730 | NA_00003359 | May 2006 | March 2010 | May 2010 | March 20, 2008 | May 27, 2010 |
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9 | NCT01345305 | Completed | Biomarker Development in Sturge-Weber Syndrome |
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Observational |
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Other / NIH |
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40 | All | 6 Months to 21 Years (Child, Adult) | NCT01345305 | NA_00043846 BVMC6204 U54NS065705-02 |
Pilot | July 2010 | November 2012 | November 2012 | May 2, 2011 | August 1, 2013 |
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10 | NCT01364857 | Active, not recruiting | French National Cohort of Children With Port Wine Stain |
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Interventional | Not Applicable |
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Other |
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150 | All | 2 Years to 12 Years (Child) | NCT01364857 | PHRN09 - GL / CONAPE | CONAPE | November 2010 | November 2019 | November 2019 | June 3, 2011 | February 24, 2017 |
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11 | NCT01031992 | Completed | Tranexamic Acid and Epistaxis in Hereditary Hemorrhagic Telangiectasia (HHT) |
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Interventional | Phase 3 |
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Other / Industry |
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23 | All | 18 Years and older (Adult, Senior) | NCT01031992 | TAHHT 141CHC9008-001 |
TAHHT | March 2002 | August 2002 | October 2002 | December 15, 2009 | December 15, 2009 |
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12 | NCT02983253 | Recruiting | Immunmodulation in Patients With HHT |
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Observational |
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Other |
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200 | All | 18 Years and older (Adult, Senior) | NCT02983253 | ImmunUHEssen | June 2016 | September 2018 | December 2018 | December 6, 2016 | December 8, 2016 |
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13 | NCT02690246 | Active, not recruiting | Symptoms and Treatment Results in Hereditary Hemorrhagic Telangiectasia |
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Observational |
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Other |
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915 | All | 18 Years and older (Adult, Senior) | NCT02690246 | University Clinic Essen | February 2016 | August 14, 2017 | December 2017 | February 24, 2016 | August 21, 2017 |
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14 | NCT01485224 | Completed | Efficacy of Thalidomide in the Treatment of Hereditary Hemorrhagic Telangiectasia |
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Interventional | Phase 2 |
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Other |
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31 | All | 18 Years and older (Adult, Senior) | NCT01485224 | EudratCT 2011-004096-36 | THALI-HHT | November 2011 | October 2014 | October 11, 2016 | December 5, 2011 | August 29, 2017 |
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15 | NCT00340964 | Completed | Positive Exposure: A Photography and Video Intervention for Individuals With Craniofacial Differences |
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Observational |
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NIH | 44 | All | 12 Years to 20 Years (Child, Adult) | NCT00340964 | 999905173 05-HG-N173 |
June 13, 2005 | January 6, 2014 | June 21, 2006 | April 17, 2018 |
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16 | NCT03001180 | Recruiting | Identification of Biomarkers for Patients With Vascular Anomalies |
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Observational |
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Other |
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1000 | All | Child, Adult, Senior | NCT03001180 | CCHMC-LMI | April 2015 | January 2050 | December 22, 2016 | February 14, 2018 |
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17 | NCT01761981 | Unknown † | Institutional Registry of Haemorrhagic Hereditary Telangiectasia |
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Observational |
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Other |
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250 | All | Child, Adult, Senior | NCT01761981 | 1900 | June 2012 | June 2017 | December 2017 | January 7, 2013 | December 17, 2015 |
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18 | NCT02399527 | Recruiting | Lymphatic Anomalies Registry |
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Observational |
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Other |
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1000 | All | Child, Adult, Senior | NCT02399527 | P00007182 | June 2013 | June 2025 | June 2025 | March 26, 2015 | January 25, 2018 |
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† Study has passed its completion date and status has not been verified in more than two years.