Now Available: Final Rule for FDAAA 801 and NIH Policy on Clinical Trial Reporting
791 studies found for:    Open Studies | "Personal Health Records"
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Rank Status Study
21 Recruiting Predictors of Outcome and Natural History in Patients With Cervical Spondylotic Myelopathy
Condition: Cervical Spondylosis With Myelopathy
Intervention: Other: no specific intervention
22 Recruiting The Patient-Driven Self-Navigated Web-Based Family Outreach Program for Cancer Prevention in High-Risk Families
Conditions: Advanced Cancers;   Anal Cancer;   Colorectal Cancer;   Gastrointestinal Cancer
Interventions: Behavioral: Family History Questionnaire;   Behavioral: Web-Based Family Outreach Registry
23 Recruiting Natural History of Rett Syndrome & Related Disorders
Conditions: Rett Syndrome;   MECP2 Duplication dIsorder;   RTT-related Conditions
Intervention:
24 Recruiting Genomic Sequencing for Childhood Risk and Newborn Illness
Conditions: Hereditary Disease;   Genetic Predisposition to Disease
Interventions: Genetic: Genomic sequencing;   Other: Family history report
25 Recruiting Prevalence and Early Markers of Atherosclerosis in Adults With a History of Kawasaki Disease
Condition: Kawasaki Disease
Intervention: Other: Cardiac evaluation
26 Recruiting A Prospective Natural History Study of Patients With Syringomyelia
Conditions: Syringomyelia;   Arnold Chiari Deformity
Intervention:
27 Recruiting The Impact of Small Bowel Obstruction (SBO) on Quality of Life (QOL); the Efficacy of a Manual Physical Therapy to Improve QOL in Subjects With a History of SBO
Conditions: Small Bowel Obstruction;   Quality of Life;   Bowel Obstruction
Intervention: Other: Manual therapy
28 Recruiting Family and Personal History of Malignancy in Intraductal Papillary Mucinous Neoplasm (IPMN)
Conditions: Pancreatic Cancer;   Neoplasm
Intervention:
29 Recruiting Sporadic Degenerative Ataxia With Adult Onset: Natural History Study
Condition: Late Onset Sporadic Cerebellar Ataxia
Intervention:
30 Recruiting Epidemiology, Infectivity and Natural History of Hepatitis C Virus Infection
Condition: Hepatitis C
Intervention:
31 Recruiting A Natural History Study of the Gangliosidoses
Conditions: Tay-Sachs Disease;   Sandhoff Disease;   Late Onset Tay-Sachs Disease;   GM1 Gangliosidosis;   GM2 Gangliosidosis
Intervention:
32 Recruiting Acute Respiratory Infection Consortium
Condition: Influenza
Intervention:
33 Recruiting Radiation Therapy and the Natural History of Childhood Cancers
Conditions: Cancer;   Childhood Malignancy
Intervention:
34 Recruiting Prospective Ascertainment for Late Effects Among Survivors of Cancer, Tumor, or a Related Illness
Condition: Pediatric or Young Adult Cancer Survivors
Interventions: Genetic: Family History Questionnaire (FHQ);   Genetic: Salvia sample;   Other: Blood sample
35 Recruiting A Natural History Study of Fibrodysplasia Ossificans Progressiva (FOP)
Condition: Fibrodysplasia Ossificans Progressiva
Intervention:
36 Recruiting Natural History of Anthrax: a Study of Primary Infected, Recovered, and Exposed Individuals (SPoRE); and Evaluation of AVA-Vaccinated Recipients
Condition: Anthrax
Intervention:
37 Recruiting MAC Bipsectral Index Below 50 for Chronic Opioid User
Condition: Anesthesia
Intervention: Other: History for opioid use
38 Recruiting Mapping the Genotype, Phenotype, and Natural History of Phelan-McDermid Syndrome
Conditions: Phelan-McDermid Syndrome;   Autism Spectrum Disorder;   Intellectual Disability
Intervention:
39 Recruiting Walking Estimated Limitation Calculated by History - Study 2
Condition: Peripheral Artery Disease
Intervention: Other: Questionnaire
40 Recruiting Natural History Study of Synucleinopathies
Condition: Patients With Synucleinopathies
Intervention:

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Study has passed its completion date and status has not been verified in more than two years.