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30 studies found for:    "von hippel-lindau syndrome"
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Rank Status Study
21 Recruiting Evaluation of 68Gallium-DOTATATE PET/CT for Detecting Neuroendocrine Tumors
Conditions: Neuroendocrine Tumors;   Von Hippel-Lindau Syndrome;   Hippel-Lindau Disease
Interventions: Drug: 68Gallium DOTATATE;   Procedure: Radio-guided surgery
22 Completed Endolymphatic Sac Tumors in a Population of Patients With Von Hippel-Lindau Disease:The Natural History and Pathobiology, and a Prospective Non-Randomized Clinical Trial of Hearing Preservation Surgery in Patients With Early Stage Endolymphatic Sac Tumors
Conditions: Deafness;   Kidney Diseases;   Kidney Neoplasms;   Neoplasms;   Retinal Diseases
Intervention:
23 Active, not recruiting Psychosocial Consequences of the Screening of Von Hippel Lindau Diseases for Patients Operated for a hémangioblastoma of Nervous Centrasl System
Condition: Hemangioblastoma (HB) of the Central Nervous System (CNS)
Intervention: Other: evaluation of anxiety with psychosocial scales
24 Recruiting National Eye Institute Biorepository for Retinal Diseases
Conditions: Age-Related Macular Degeneration;   Diabetic Retinopathy;   Von Hippel-Lindau Syndrome;   Retinal Disease;   Retinal Vein Occlusion
Intervention:
25 Completed Treatment of Exudative and Vasogenic Chorioretinal Diseases Including Variants of AMD and Other CNV Related Maculopathy
Conditions: Coats' Disease;   Idiopathic Retinal Telangiectasia;   Retinal Angiomatous Proliferation;   Polypoidal Choroidal Vasculopathy;   Pseudoxanthoma Elasticum;   Pathological Myopia;   Multi-focal Choroiditis;   Rubeosis Iridis;   Von Hippel Lindau Disease;   BEST VITELLIFORM MACULAR DYSTROPHY, MULTIFOCAL (Disorder)
Intervention: Drug: ranibizumab injection (0.5 mg)
26 Recruiting Familial Investigations of Childhood Cancer Predisposition
Conditions: Acute Leukemia;   Adenomatous Polyposis;   Adrenocortical Carcinoma;   AML;   BAP1 Tumor Predisposition Syndrome;   Carney Complex;   Choroid Plexus Carcinoma;   Constitutional Mismatch Repair Deficiency Syndrome;   Diamond-Blackfan Anemia;   DICER1 Syndrome;   Dyskeratosis Congenita;   Emberger Syndrome;   Familial Acute Myeloid Leukaemia;   Familial Adenomatous Polyposis;   Fanconi Anemia;   Familial Cancer;   Familial Wilms Tumor;   Familial Neuroblastoma;   GIST;   Hereditary Breast and Ovarian Cancer;   Hereditary Paraganglioma-Pheochromocytoma Syndrome;   Hodgkin Lymphoma;   Juvenile Polyposis;   Li-Fraumeni Syndrome;   Lynch Syndrome;   MDS;   Melanoma Syndrome;   Multiple Endocrine Neoplasia Type 1;   Multiple Endocrine Neoplasia Type 2;   Neuroblastoma;   Neurofibromatosis Type 1;   Neurofibromatosis Type II;   Nevoid Basal Cell Carcinoma Syndrome;   Non Hodgkin Lymphoma;   Noonan Syndrome and Other Rasopathy;   Overgrowth Syndromes;   Pancreatic Cancer;   Peutz-Jeghers Syndrome;   Pheochromocytoma/Paraganglioma;   PTEN Hamartoma Tumor Syndrome;   Retinoblastoma;   Rhabdoid Tumor Predisposition Syndrome;   Rhabdomyosarcoma;   Rothmund-Thomson Syndrome;   Tuberous Sclerosis;   Von Hippel-Lindau Disease
Intervention:
27 Recruiting Clinical Manifestations and Molecular Bases of Heritable Urologic Malignant Disorders
Conditions: Kidney Cancer;   Urologic Malignant Disorders
Intervention:
28 Active, not recruiting A Study of Cabozantinib (XL184) vs Everolimus in Subjects With Metastatic Renal Cell Carcinoma
Condition: Renal Cell Carcinoma
Interventions: Drug: Cabozantinib tablets;   Drug: Everolimus (Afinitor) tablets
29 Recruiting Diagnosis of Pheochromocytoma
Condition: Pheochromocytoma
Intervention:
30 Completed Metabolic Mapping to Measure Retinal Metabolism
Conditions: Macular Degeneration;   Diabetic Retinopathy;   Hippel-Landau Disease;   Mitochondria
Intervention: Procedure: Feasibility Study - Imaging System

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Study has passed its completion date and status has not been verified in more than two years.