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"WAGR syndrome"
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"WAGR syndrome" (3 records)
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1 | NCT00758108 | Completed | Characterization of WAGR Syndrome and Other Chromosome 11 Gene Deletions |
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Observational |
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NIH |
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197 | All | 2 Years to 99 Years (Child, Adult, Senior) | NCT00758108 | 080213 08-CH-0213 |
September 11, 2008 | April 29, 2015 | September 23, 2008 | October 6, 2017 |
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2 | NCT01793168 | Recruiting | Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford |
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Observational |
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Other |
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20000 | All | Child, Adult, Senior | NCT01793168 | 03-10-014 Hypersomnia Foundation National Ataxia Foundation 4p- Support Group CdLS Foundation Hyperacusis Research Limited Kabuki Syndrome Network Kawasaki Disease Foundation Klippel-Feil Syndrome Freedom Leiomyosarcoma Direct Research MSS Support Group ML4 Foundation Stickler Involved People IWSA Soft Bones PWN4PWN aHUS Klippel-Feil Syndrome Alliance American MEN Support Kleine-Levin Syndrome All Things Kabuki WSS Foundation BIVA ABDA PROS Foundation (HLH) |
CoRDS | July 2010 | December 2100 | December 2100 | February 15, 2013 | October 2, 2017 |
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3 | NCT01314560 | Completed | Study of the Pathophysiological Mechanisms Involved in Bleeding Events |
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Interventional | Not Applicable |
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Other |
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30 | Male | 6 Years to 45 Years (Child, Adult) | NCT01314560 | P071008 | LOWE | February 2009 | July 2010 | December 2010 | March 14, 2011 | September 19, 2011 |
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† Study has passed its completion date and status has not been verified in more than two years.