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42 studies found for:    "Crouzonodermoskeletal syndrome" OR "Craniofacial Dysostosis" OR "Crouzon's Disease" OR "Crouzons Disease" OR "Craniosynostosis" OR "Crouzon Disease"
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"Crouzonodermoskeletal syndrome" OR "Craniofacial Dysostosis" OR "Crouzon's Disease" OR "Crouzons Disease" OR "Craniosynostosis" OR "Crouzon Disease" (42 records)
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Rank Status Study
1 Withdrawn Endoscopic Treatment for Isolated, Single Suture Craniosynostosis
Condition: Craniosynostosis
Intervention: Procedure: Endoscopic strip craniectomy
2 Completed Genetic Analysis of Craniosynostosis, Philadelphia Type
Conditions: Craniosynostosis;   Philadelphia Type Craniosynostosis
Intervention:
3 Recruiting Osteogenic Profiling of Tissue From Children With Craniosynostosis
Condition: Craniosynostosis
Intervention: Other: biopsy
4 Recruiting Network Of Clinical Research Studies On Craniosynostosis, Skull Malformations With Premature Fusion Of Skull Bones
Condition: Craniosynostosis
Interventions: Other: Craniosynostosis Network Environmental Survey;   Other: 2D/3D Photography;   Procedure: Buccal Swab Cell Sampling;   Procedure: Blood sampling;   Procedure: Skin Biopsy;   Procedure: Tissues from a Clinically Indicated Procedure;   Procedure: Pre-operative CT Scan Image Files.
5 Completed Qualitative and Quantitative Study Which Aims to Determine the Specifics of the Announcement for the Diagnosis of Patients With Craniosynostosis and Their Parents to Better Support Them in Their Care
Condition: Craniosynostosis
Interventions: Other: qualitative survey;   Other: quantitative survey
6 Recruiting The Efficacy and Population Pharmacokinetics of Tranexamic Acid for Craniosynostosis Surgery
Condition: Craniosynostosis
Interventions: Drug: high dose TXA;   Drug: Low dose TXA
7 Recruiting Clinical Study of Muenke Syndrome (FGFR3-Related Craniosynostosis)
Conditions: Craniosynostosis;   Muenke Syndrome
Intervention:
8 Unknown  The Effect of Gender on the Consumption of Pain Medication in Infants Undergoing Craniosynostosis Repair or Untethering of Cord in ITU
Conditions: Craniosynostosis Repair;   Untethering of Cord
Intervention:
9 Completed Child and Infant Learning Project
Condition: Craniosynostosis
Intervention: Behavioral: neurobehavioral development
10 Completed Effect of Tranexamic Acid Based on Pharmacokinetics in Pediatric Patients Undergoing Craniosynostosis Surgery: Randomized Controlled Trial
Condition: Craniosynostosis Patients Undergoing Distraction Osteotomy
Interventions: Drug: Tranexamic Acid;   Drug: normal saline
11 Unknown  Blood Loss and Transfusion Requirement in Infants Treated With Tranexamic Acid
Condition: Craniosynostoses
Interventions: Drug: Tranexamic Acid;   Drug: Saline Placebo
12 Withdrawn Comparison of a Bone Product to Bone Dust in Ossification of Small Calvarial Defects.
Condition: Metopic Craniosynostosis
Intervention: Biological: Allogenix Plus
13 Recruiting Efficacy of Amicar for Children Having Craniofacial Surgery
Condition: Craniosynostosis
Interventions: Drug: Amicar (ε-aminocaproic acid);   Drug: normal saline
14 Recruiting MRI for Non-invasive Evaluation of Brain Stress
Condition: Craniosynostosis
Intervention: Other: MR scan
15 Completed Nautilus: Dynamic Craniotomy; New Surgical Technique and Preliminary Results
Condition: Children With Craniosynostoses
Intervention: Procedure: dynamic craniotomy
16 Completed Amicar Pharmacokinetics of Children Having Craniofacial Surgery
Condition: Craniosynostosis
Intervention: Drug: Epsilon-Aminocaproic Acid
17 Terminated
Has Results
Tranexamic Acid for Craniofacial Surgery
Conditions: Craniosynostosis;   Bleeding
Interventions: Drug: Tranexamic acid;   Drug: saline
18 Withdrawn Hanger Helmet Study
Conditions: Plagiocephaly;   Craniosynostosis
Interventions: Device: Hangar Helmet;   Device: P-Pod Helmet
19 Recruiting Irradiated Blood Versus Non Irradiated Blood Transfusions in Craniosynostosis Repair
Conditions: Graft Versus Host Disease;   Hyperkalemia;   Craniectomy;   Synostectomy;   FOA;   Congenital Malformations
Interventions: Other: Irradiated Blood Transfusions;   Other: Non-Irradiated Blood Transfusions
20 Unknown  Study of Resting and Exercising Body Functioning in Freeman-Sheldon Syndrome and Related Conditions
Conditions: Arthrogryposis;   Craniofacial Abnormalities
Interventions: Other: Lactate, Glucose, and Adenosine Triphosphate Blood Levels;   Procedure: Physiological Stress Test;   Other: Functional Enquiry Form;   Other: Strength, Joint ROM, Girth and Length Measurements;   Other: Study Physical Examination;   Other: Observational Gait Analysis;   Other: Mental Health Interview

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Study has passed its completion date and status has not been verified in more than two years.