Follow-up Care After Treatment for Endometrial Cancer
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Purpose
The purposes of this study are to examine the needs (symptoms, support, information) and satisfaction of women during follow-up in the community after completing treatment for endometrial cancer. This information will be collected from the perspective of the women themselves, their primary care providers (family physician or gynecologist) and the health care providers (oncologist, nurses, social worker, psychologist) at the cancer centre.
| Condition |
|---|
|
Endometrial Neoplasm |
| Study Type: | Observational |
| Study Design: | Observational Model: Ecologic or Community Time Perspective: Retrospective |
| Official Title: | Follow-up After Primary Therapy for Endometrial Cancer; Implementation of a Cancer Care Ontario Guideline: A Pilot Evaluation Study. |
- Qualitative description of participants perception [ Time Frame: after 6 month ] [ Designated as safety issue: No ]
| Enrollment: | 20 |
| Study Start Date: | August 2008 |
| Study Completion Date: | February 2010 |
| Primary Completion Date: | September 2009 (Final data collection date for primary outcome measure) |
Research Question How has this transfer in follow-up care impacted performance indicators?
- Volume of follow-up care transferred
- Percentage of women, who have required a re-entry consultation
- Fiscal implication of this transfer of follow-up care
Patient stakeholders:
- What are women's perceptions of the transition of follow-up care?
- What are women's supportive care needs during the transition of follow-up care and ongoing needs?
Primary Care Practitioner stakeholders:
- What are the primary care practitioners' perceptions of the process of transition of follow-up care?
- What are the primary care practitioners' educational needs?
- What are the primary care practitioners' perceptions of the process of re-entry for in women with suspected recurrence?
Tertiary Centre: Health care providers stakeholders
o What are the perceptions of tertiary health care providers about the transition of follow-up care?
Eligibility| Ages Eligible for Study: | 18 Years and older |
| Genders Eligible for Study: | Both |
| Accepts Healthy Volunteers: | No |
| Sampling Method: | Non-Probability Sample |
The study will employ a convenience sample of women with endometrial cancer treated at the Ottawa Hospital Cancer Centre who have been discharged from follow-up after September 2005. Women will be identified from the Cancer Centre health records. The primary care providers will also be identified by health records as provided by the endometrial cancer patient when they registered with the TOHCC.
Inclusion Criteria:
Participants- women diagnosed with endometrial cancer:
- 18 years of age or older.
- speak English or French
- who have been treated (surgery and/or radiation therapy) at TOH.
- who have been discharged from follow-up in the cancer centre in the past 6 months.
Participants-primary care provider practitioner:
- providing follow-up care to at least one woman with endometrial cancer
Participants- health care providers at the tertiary centre :
- physicians, nurses or allied health care providers whose primary responsibility are to provide care to women with gynecological cancer.
Exclusion Criteria:
Contacts and Locations More Information
No publications provided
| Responsible Party: | Ottawa Hospital Research Institute |
| ClinicalTrials.gov Identifier: | NCT00750672 History of Changes |
| Other Study ID Numbers: | OHRI 2008-361, 2008361-01H for OHREB |
| Study First Received: | September 9, 2008 |
| Last Updated: | July 11, 2012 |
| Health Authority: | Canada: Ethics Review Committee |
Keywords provided by Ottawa Hospital Research Institute:
|
Endometrial neoplasia Follow-up care survivorship Primary care provider |
Additional relevant MeSH terms:
|
Neoplasms Endometrial Neoplasms Adenoma Uterine Neoplasms Genital Neoplasms, Female Urogenital Neoplasms |
Neoplasms by Site Uterine Diseases Genital Diseases, Female Neoplasms, Glandular and Epithelial Neoplasms by Histologic Type |
ClinicalTrials.gov processed this record on May 16, 2013