A Study of Survivorship Service Capacities Among Health Care Agencies in New York City

This study has been completed.
Sponsor:
Collaborator:
NYS DEPT HEALTH CANCER SVC PRO
Information provided by (Responsible Party):
Memorial Sloan-Kettering Cancer Center
ClinicalTrials.gov Identifier:
NCT00578162
First received: December 19, 2007
Last updated: January 6, 2012
Last verified: January 2012
  Purpose

To describe the range of services available to cancer survivors in the NYC area.

To determine organizations' need for assistance to enhance services for survivors.


Condition Intervention
All Cancers
Behavioral: we will screen potential agencies using our CALL SCRIPT and our AGENCY SCREENER

Study Type: Observational
Study Design: Time Perspective: Prospective
Official Title: A Study of Survivorship Service Capacities Among Health Care Agencies in New York City

Resource links provided by NLM:


Further study details as provided by Memorial Sloan-Kettering Cancer Center:

Primary Outcome Measures:
  • To determine agencies' need for assistance to enhance services for survivors. [ Time Frame: 2 years ] [ Designated as safety issue: No ]

Study Start Date: April 2005
Study Completion Date: April 2009
Primary Completion Date: April 2009 (Final data collection date for primary outcome measure)
Groups/Cohorts Assigned Interventions
1
Data about participating agencies will be collected by electronic survey. Agencies will be identified using the NYSDOH's existing mailing list of care facilities located in the five boroughs of New York City, referral databases and resource guides created by the American Cancer Society (ACS), the New York Hospital Directory.
Behavioral: we will screen potential agencies using our CALL SCRIPT and our AGENCY SCREENER
A cancer care facility or 'agency' is the study's unit of analysis. Data about participating agencies will be collected by electronic survey. Agencies will be identified using the NYSDOH's existing mailing list of care facilities located in the five boroughs of New York City, referral databases and resource guides created by the American Cancer Society (ACS), the New York Hospital Directory

Detailed Description:

To describe the range of services available to cancer survivors in the NYC area.

To determine organizations' need for assistance to enhance services for survivors.

  Eligibility

Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   Yes
Sampling Method:   Non-Probability Sample
Study Population

We assume that the collective network of cancer care and support services can be represented with data from no more than 300 New York City agencies, across all five boroughs. Theseagencies would include hospitals, clinical diagnostic centers, and community-based organizations.

Criteria

Inclusion Criteria:

  • To be eligible to participate in the study, an agency must:

    1. Be a current provider of either:

      • General health services (GHS), such as primary care, health education and wellness, mental health services, home health care, palliative care, or cancer screening and diagnosis;
      • Cancer-specific medical treatments (CMT), such as cancer surgery, radiation, chemotherapy, hormonal therapy; experimental therapies; cancer pain and symptom management; rehabilitation services; post-treatment monitoring and surveillance; or prophylactic treatments, such as chemoprevention; or
      • Any type of specialized 'post-cancer' or 'after-cancer' medical care or support services (SMC) (i.e., psychotherapeutic, relationship and family, psycho-educational,wellness and quality of life)
    2. Be located within the five boroughs of New York City
    3. Have been serving cancer patients for 12 months or longer, and
    4. Be willing and able to identify an English-speaking representative, 21 years of age or older as its designated key informant.

Exclusion Criteria:

  • We will limit this study to provider agencies such as hospitals, diagnostic centers, clinics, health and human service agencies, and grassroots community organizations and public service settings that offer programs for cancer survivors. Independent practitioners or private practice settings will not be surveyed. Our survey questions are intended for major health services organizations and are not appropriate for private practices settings.

We will use our screening questionnaire to determine where or not a given agency should be included or excluded from the study AGENCY SCREENER.

  Contacts and Locations
Please refer to this study by its ClinicalTrials.gov identifier: NCT00578162

Locations
United States, New York
Memorial Sloan-Kettering Cancer Center
New York, New York, United States, 10065
Sponsors and Collaborators
Memorial Sloan-Kettering Cancer Center
NYS DEPT HEALTH CANCER SVC PRO
Investigators
Principal Investigator: David Loundsbury, PhD Memorial Sloan-Kettering Cancer Center
  More Information

Additional Information:
No publications provided

Responsible Party: Memorial Sloan-Kettering Cancer Center
ClinicalTrials.gov Identifier: NCT00578162     History of Changes
Other Study ID Numbers: 05-048
Study First Received: December 19, 2007
Last Updated: January 6, 2012
Health Authority: United States: Institutional Review Board

Keywords provided by Memorial Sloan-Kettering Cancer Center:
Cancer
Survivors

ClinicalTrials.gov processed this record on April 23, 2014