Trial record 1 of 1 for:    The Worldwide Sarcoidosis Research Study
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Worldwide Sarcoidosis Research Study (WISE)

This study is currently recruiting participants.
Verified May 2012 by University of Iowa
Sponsor:
Collaborator:
Information provided by (Responsible Party):
Alicia Gerke, University of Iowa
ClinicalTrials.gov Identifier:
NCT01610843
First received: May 31, 2012
Last updated: June 1, 2012
Last verified: May 2012

May 31, 2012
June 1, 2012
December 2011
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Complete list of historical versions of study NCT01610843 on ClinicalTrials.gov Archive Site
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Worldwide Sarcoidosis Research Study
Worldwide Sarcoidosis Research Study

The aim of this study is to collect information about the clinical course and characteristics of sarcoidosis patients around the world through web-based surveys. Recruitment is directed at and driven by patients in the sarcoidosis community. This will allow the the investigators to study sarcoidosis patients across all demographic, geographic, and socioeconomic boundaries, not just patients seen at large research centers. The investigators believe this study can give investigators a broader and less biased view of sarcoidosis. The investigators would also like to collect genetic samples on this population to assess genetic variance in different phenotypes.

The information for the study would be provided through a web based survey system that can be accessed by patients or physicians of patients from any computer with Internet access. This system would collect clinical information in sufficient detail so that the phenotype of individual patients can be evaluated. Upon agreeing to participate in further research studies through the website, subjects will also have the opportunity to provide a DNA sample.

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Observational
Observational Model: Cohort
Time Perspective: Prospective
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Retention:   Samples With DNA
Description:

Saliva samples will be collected and processed at the University of Iowa.

Non-Probability Sample

Individuals diagnosed with sarcoidosis who have a computer with Internet access.

Sarcoidosis
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*   Includes publications given by the data provider as well as publications identified by ClinicalTrials.gov Identifier (NCT Number) in Medline.
 
Recruiting
10000
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Inclusion Criteria:

  • Diagnosis of Sarcoidosis
  • Access to a computer with Internet

Exclusion Criteria:

  • None
Both
18 Years and older
No
Contact: Alicia K Gerke, MD 319-356-1869 alicia-gerke@uiowa.edu
Contact: Emily K Phillips, BSN 319-356-2821 emily-phillips@uiowa.edu
United States
 
NCT01610843
200907757, 5UL1RR024979
No
Alicia Gerke, University of Iowa
University of Iowa
National Center for Research Resources (NCRR)
Principal Investigator: Alicia K Gerke, MD University of Iowa
University of Iowa
May 2012

ICMJE     Data element required by the International Committee of Medical Journal Editors and the World Health Organization ICTRP