Bladder Cancer Patient-Reported Outcomes

• Illness intrusiveness [ Time Frame: Duration of Study ] [ Designated as safety issue: No ]
  Data are assessed at one time point only. Survey participants may be assessed at any point between diagnosis and 4 years post-diagnosis. The questions in the survey typically ask about health-related quality of life in the preceding 4 weeks.
• CaPSURE Fear of Recurrence [ Time Frame: Duration of Study ] [ Designated as safety issue: No ]

  The fear of recurrence measure was originally developed and validated for the Cancer of the Prostate Strategic Urologic Research Endeavor (CaPSURE) study.

  Data are assessed at one time point only. Survey participants may be assessed at any point between diagnosis and 4 years post-diagnosis. The questions in the survey typically ask about health-related quality of life in the preceding 4 weeks.

The purpose of this study is to identify aspects of the bladder cancer (BlCa) survivorship experience that differ by clinical risk at diagnosis. The investigators will collect cross-sectional data from persons with BlCa to identify aspects of health-related quality of life (HRQOL) and symptom management. The study originally enrolled only nonmuscle-invasive bladder cancer survivors but has been expanded to include survivors with any stage disease. Information from this study will be used to develop a new patient education and counseling intervention.

Bladder cancer patients (all stages) recruited at hospitals affiliated with Baylor College of Medicine and MD Anderson Cancer Center and via the websites of bladder cancer survivor organizations

Inclusion Criteria:

• > 18 years
• Diagnosed with BlCa within the past 4 years
• Able to read, speak, and understand English
• Able to provide informed consent.

Exclusion Criteria:

• Younger than 18
• Diagnosed BlCa longer than 4 years ago
• Unable to read, speak, and understand English
• Unable to provide informed consent.