Telephone Interview of Patients That Participated in the the Pivotal Betaferon MS Trial.

This study has been completed.
Sponsor:
Information provided by:
Bayer
ClinicalTrials.gov Identifier:
NCT01031459
First received: December 8, 2009
Last updated: January 3, 2012
Last verified: January 2012

December 8, 2009
January 3, 2012
January 2010
December 2010   (final data collection date for primary outcome measure)
Descriptive exploration of mortality, EDSS, cognition, resource use, SPMS status and employment history by length of exposure to Betaseron and stratified by the original clinical trial group assignment (1.6 MIU, 8 MIU, placebo) [ Time Frame: 20 years ] [ Designated as safety issue: No ]
Not Provided
Complete list of historical versions of study NCT01031459 on ClinicalTrials.gov Archive Site
Not Provided
Not Provided
Not Provided
Not Provided
 
Telephone Interview of Patients That Participated in the the Pivotal Betaferon MS Trial.
An Observational 20-year, Cross-sectional, Long-term Follow up of the Patient Cohort Enrolled in the Pivotal Study of Betaseron® (Interferon Beta-1b) in Relapsing-remitting Multiple Sclerosis

The purpose of this study is to investigate the clinical status of patients who participated in the original pivotal Betaseron study at 20 years after randomized treatment initiationStudy end-points include:

  1. Mortality - All-cause mortality - Cause specific mortality - Multiple sclerosis-related mortality
  2. EDSS (Expanded Disability Status Scale)
  3. Cognition
  4. Resource use
  5. SPMS (Secondary Progressive Multiple Sclerosis) status
  6. Employment history
Not Provided
Observational
Observational Model: Cohort
Time Perspective: Cross-Sectional
Not Provided
Retention:   None Retained
Description:

n.a

Non-Probability Sample

Patients with MS that participated in the 16Y-LTF and Pivitol studies

Multiple Sclerosis
Drug: Betaseron (Interferon beta-1b, BAY86-5046)
Telephone survey of all patients.
Group 1
Intervention: Drug: Betaseron (Interferon beta-1b, BAY86-5046)
Not Provided

*   Includes publications given by the data provider as well as publications identified by ClinicalTrials.gov Identifier (NCT Number) in Medline.
 
Completed
176
December 2010
December 2010   (final data collection date for primary outcome measure)

Inclusion Criteria:

  • Previously enrolled in the Betaseron pivotal study protocols TB01-35686 in the US and TB01-35886 in Canada (total, N=372)
  • Patient, caregiver, or legal guardian must provide written informed consent
  • Patient must confirm her/his ability and agreement to participate in the study at the beginning of the phone call
Both
18 Years and older
No
Contact information is only displayed when the study is recruiting subjects
United States,   Canada
 
NCT01031459
14261, 20Y-LTF
Yes
Global Medical Affairs Therapeutic Area Head, Bayer Healthcare Phamaceuticals Inc.
Bayer
Not Provided
Study Director: Bayer Study Director Bayer
Bayer
January 2012

ICMJE     Data element required by the International Committee of Medical Journal Editors and the World Health Organization ICTRP