Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome

The recruitment status of this study is unknown because the information has not been verified recently.
Verified December 2008 by Taichung Veterans General Hospital.
Recruitment status was  Not yet recruiting
Sponsor:
Information provided by:
Taichung Veterans General Hospital
ClinicalTrials.gov Identifier:
NCT00808548
First received: December 15, 2008
Last updated: NA
Last verified: December 2008
History: No changes posted

December 15, 2008
December 15, 2008
December 2008
February 2009   (final data collection date for primary outcome measure)
experience [ Time Frame: one year ] [ Designated as safety issue: No ]
Same as current
No Changes Posted
Not Provided
Not Provided
Not Provided
Not Provided
 
Exploring Stress and Coping Behaviors of the Major Carer Whose Children With Prader-Willi Syndrome
Not Provided

Ask the 4 carers of children with Prader-willi syndrome to disclose their experiences and difficulties for searching better management and intervention

Not Provided
Observational
Observational Model: Case-Only
Time Perspective: Retrospective
Not Provided
Not Provided
Non-Probability Sample

a person who care and live with childre with Prader-Willi syndrome

Prader-Willi Syndrome
  • Other: counseling, emotional support
    no
  • Other: emotional support
    emotional support during the interview
  • Other: emotional support
    emotional supporting during the interview
Lifestyle counseling
Interventions:
  • Other: counseling, emotional support
  • Other: emotional support
  • Other: emotional support
Not Provided

*   Includes publications given by the data provider as well as publications identified by ClinicalTrials.gov Identifier (NCT Number) in Medline.
 
Not yet recruiting
8
December 2009
February 2009   (final data collection date for primary outcome measure)

Inclusion Criteria:

  • a person who care and live with children with Prader-Willi syndrome

Exclusion Criteria:

  • siblings or less-contact family
  • teachers
Both
6 Years to 12 Years
No
Taiwan
 
NCT00808548
C08169
Yes
shu chien, Taichung Veterans General Hospital
Taichung Veterans General Hospital
Not Provided
Not Provided
Taichung Veterans General Hospital
December 2008

ICMJE     Data element required by the International Committee of Medical Journal Editors and the World Health Organization ICTRP