The goals of the study are to investigate the needs of older caregivers caring for adults with cancer at 1-week and 2 weeks following hospital discharge and to explore strategies that may assist caregivers in their home caregiving needs. The study will enroll cancer patients and their older caregivers admitted to 9100 and 9300, which are the hematological and non-hematological malignancy units at Duke University Medical Center (DUMC) respectively. Findings derived from this study will inform the development of interventions for better discharge preparation of caregivers for home caregiving. Additionally, the study has the potential to reduce non-emergent use of acute healthcare services through caregiver support and education.
Primary Outcome Measures:
- Unmet cancer caregiver needs [ Time Frame: 1 week after patient discharge from hospital ] [ Designated as safety issue: No ]
Describe needs of caregivers caring for an older adult with cancer at home during the first week of hospital discharge, as measured by coded interview.
- Caregiver strategies assisting in caregiving role [ Time Frame: 1 week after patient discharge from hospital ] [ Designated as safety issue: No ]
Explore from caregivers strategies that may assist them in their caregiving during the first week of hospital discharge (including, but not limited to, managing patient symptoms), as measured by coded interview.
- Caregiver decision making in seeking assistance for cancer patient [ Time Frame: 1 week after patient discharge from hospital ] [ Designated as safety issue: No ]
Describe the process used by caregivers in deciding when to seek assistance for care of their loved ones once discharged from the hospital, as measured by coded interview.
Secondary Outcome Measures:
- Challenges or successes in caring for loved one since first interview [ Time Frame: 2 weeks after patient discharge from the hospital ] [ Designated as safety issue: No ]
At 2 weeks a second qualitative interview will be conducted with the cancer caregivers. The purpose of this interview is to clarify any statements made in the first interview, and identify any additional challenges faced in caregiving, or any aspects of caregiving that have become easier for the caregiver. This will be measured by the coding in the interviews.
| Estimated Enrollment:
| Study Start Date:
| Estimated Primary Completion Date:
||August 2015 (Final data collection date for primary outcome measure)
Baseline demographic data about the caregiver and patient will be collected at patient beside prior to hospital discharge. Qualitative interviews will be conducted with the cancer caregivers in their home at 1-week after their loved one was discharged from the hospital, and at 2-weeks after discharge from the hospital. This is a qualitative study that will utilize a qualitative descriptive design.