Aspiring to Awesome- Patient Preference Privacy Selections in EMR
Health information technology, including health information exchange, offers the potential to improve care by providing an integrated view of relevant, integrated patient information from multiple health care providers practicing in multiple sites. However, realizing that potential can be difficult, particularly with respect sensitive information. Increasingly, patients, patient advocate groups, and even the National Coordinator for Health Information Technology (ONC) are pushing for patients to have more granular control over specifically who can see what personal health information (PHI) in their electronic health records (EHRs).
This will be a demonstration project aimed at showing the initial feasibility a system allowing patient controls on their EHR data system, Advanced Data Access Control (ADAC). Because of the exploratory nature of the research, the investigators do not have specific hypotheses. The investigators hope that this demonstration and feasibility project will lead to more extensive prospective evaluations of ADAC and other tools for enhancing patient control over access to their EHRs.
|Study Design:||Observational Model: Cohort
Time Perspective: Prospective
|Official Title:||Aspiring to Awesome- Patient Preference Privacy Selections in EMR|
- Providers impressions of the patients having granular control of their EHR record [ Time Frame: 6 month study ] [ Designated as safety issue: No ]Providers will be surveyed on their impression of providing patients the ability to control aspects of their own EHR.
- Patients impression of preference selection [ Time Frame: 6 month study ] [ Designated as safety issue: No ]Patients' impressions of the process for obtaining their preferences and the use of that information to control who sees what information in their electronic medical record.
|Study Start Date:||May 2013|
|Estimated Study Completion Date:||March 2014|
|Estimated Primary Completion Date:||December 2013 (Final data collection date for primary outcome measure)|
Each patient subject will use an online program to record their preferences what each of their providers can see. The electronic medical record (EMR) will then apply them to data displays.
Other: Patient preferences
Software for recording patients' preferences for which providers see which parts of their EMRs, and EMR software for restricting access to data based on patients' preferences.
patients who have visited their primary care physician at least 5 times in the previous 1 year.
Please refer to this study by its ClinicalTrials.gov identifier: NCT01862133
|Contact: William Tierney, MDfirstname.lastname@example.org|
|Contact: Amy Byrketemail@example.com|
|United States, Indiana|
|Wishard Health Services, Primary Care Center||Not yet recruiting|
|Indianapolis, Indiana, United States, 46202|
|Contact: Peter Schwartz, MD 317-692-2323|
|Sub-Investigator: Peter Schwartz, MD, PhD|
|Principal Investigator:||William Tierney, MD||Indiana University|