UCSF Research Participant Registry
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Purpose
The UCSF Research Participant Registry provides a service for investigators who seek to enroll eligible participants in their studies and for people who want to volunteer for clinical research. People with any diagnosed condition/disease, as well as healthy volunteers, can join the Registry by visiting the website at http://registry.ucsf.edu or calling 855-855-8273. To register, a person consents to be contacted about future studies and fills out an online form that asks for contact and health information. The participant's profile is used to match him or her to a specific study. Recruitment materials are sent to the Registry participant, who then decides whether to contact UCSF for further screening and potential enrollment.
| Condition |
|---|
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Any Disease or Condition Healthy |
| Study Type: | Observational [Patient Registry] |
| Study Design: | Observational Model: Cohort Time Perspective: Prospective |
| Target Follow-Up Duration: | 4 Years |
| Official Title: | Facilitating Enrollment Into UCSF Clinical Studies Via a Volunteer Research Participant Registry |
- Increased screening & enrollment for UCSF clinical studies [ Time Frame: 4 years ] [ Designated as safety issue: No ]By broadening the pool of potential volunteers, the Registry is expected to increase the number of screened & enrolled participants in UCSF studies.
| Estimated Enrollment: | 10000 |
| Study Start Date: | March 2012 |
| Estimated Study Completion Date: | June 2016 |
| Estimated Primary Completion Date: | June 2016 (Final data collection date for primary outcome measure) |
| Groups/Cohorts |
|---|
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Potential research participants
UCSF Registry represents a single recruitment pool of individuals who have consented to be contacted about future studies for which they may be eligible based on self-reported health information.
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Show Detailed Description Eligibility| Genders Eligible for Study: | Both |
| Accepts Healthy Volunteers: | Yes |
| Sampling Method: | Non-Probability Sample |
General public. Anyone may join the UCSF Registry, but adult & pediatric residents of the San Francisco Bay Area are targeted because of their proximity to UCSF research clinics.
INCLUSION CRITERIA
- Adults age 18 years or older
- Minors/children with consent from parent or guardian
EXCLUSION CRITERIA
- Failure to provide consent
Contacts and Locations| Contact: Participant Recruitment at UCSF | 855-855-UCSF (855-8273) | recruitment@ucsf.edu |
| United States, California | |
| Clinical & Translational Science Institute, University of California San Francisco | Recruiting |
| San Francisco, California, United States, 94107 | |
| Contact: Participant Recruitment at UCSF 855-855-8273 recruitment@ucsf.edu | |
| Contact: Nariman Nasser, BA, CCRP | |
| Principal Investigator: Deborah G Grady, MD, MPH,FACP | |
| Principal Investigator: C. William Balke, MD | |
| Principal Investigator: | Deborah G Grady, MD, MPH,FACP | Clinical & Translational Science Institute, University of California San Francisco |
More Information
Additional Information:
No publications provided
| Responsible Party: | University of California, San Francisco |
| ClinicalTrials.gov Identifier: | NCT01717378 History of Changes |
| Other Study ID Numbers: | 12-08393, UL1TR000004 |
| Study First Received: | October 26, 2012 |
| Last Updated: | April 25, 2013 |
| Health Authority: | United States: Institutional Review Board |
Keywords provided by University of California, San Francisco:
|
Patient Recruitment Research Subject Recruitment Research Subject Selection Selection of Subjects |
Health Surveys Health Questionnaires Health Interviews |
ClinicalTrials.gov processed this record on May 16, 2013