Parenting a Child With Autism Spectrum Disorder and Marital Status

This study is currently recruiting participants. (see Contacts and Locations)
Verified July 2014 by Sheba Medical Center
Sponsor:
Information provided by (Responsible Party):
Sheba Medical Center
ClinicalTrials.gov Identifier:
NCT01435733
First received: September 15, 2011
Last updated: July 17, 2014
Last verified: July 2014
  Purpose

The purpose of this study is to investigate whether the presence of a child with Autism Spectrum Disorder places parents at increased risk for divorce.


Condition
Autism Spectrum Disorder

Study Type: Observational
Study Design: Observational Model: Case-Only
Time Perspective: Retrospective
Official Title: Parenting a Child With Autism Spectrum Disorder and Marital Status

Resource links provided by NLM:


Further study details as provided by Sheba Medical Center:

Primary Outcome Measures:
  • lower or higher levels of divorce [ Time Frame: not relevant (phone survey) ] [ Designated as safety issue: No ]

Estimated Enrollment: 200
Study Start Date: September 2011
Estimated Study Completion Date: January 2015
Estimated Primary Completion Date: January 2015 (Final data collection date for primary outcome measure)
Groups/Cohorts
Parents of children with ASD
Parents with one or more children diagnosed with Autism Spectrum Disorder

Detailed Description:

Autism spectrum disorders (ASDs) are lifelong neurodevelopmental disorders involving a triad of impairments in communication and social reciprocity and increases in repetitive/restricted interests and behaviors. ASD includes: autistic disorder, Asperger's syndrome, pervasive developmental disorder not otherwise specified (PDD-NOS), Rett's syndrome, and childhood disintegrative disorder as pervasive developmental disorders (American Psychiatric Association [DSM-IV-TR], 2000).

Few disabilities appear to be more taxing on parents than ASDs.Parents of children with ASD fare worse on a variety of measures of well-being than parents of children without disabilities as well as parents of children with other types of disabilities.

Studies investigating the impact of a child with disabilities, specifically ASD, are inconclusive. However, parents of children with ASD may be at increased risk for divorce due to a variety of personal and disability related factors. In Israel the relationship of having a child with autism on the probability of divorce has not been tested yet. The aim of this study is to profile this relationship and determine the magnitude and directionality of the effect raising ASD children has on the resilience of the institution of marriage and the satisfaction both partners derive. This will be tested using a short telephone survey.

  Eligibility

Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population

Couples who have children with ASD will be recruited to participate in this study from the Weinberg Child Development Center in the Edmond and LilySafra Children'shospital, ShebaMedical Center, Ramat-Gan, Israel. Parents will be contacted through the telephone and provided with a brief explanation about the study. Participation will be voluntary with no monetary compensation. Parents who volunteer to participate will then be presented with a short telephone survey, asking them about their marital status and other variables related to the link between parenting an ASD child and their marital status.

Criteria

Inclusion Criteria:

  • parents to a child with ASD

Exclusion Criteria:

  • none
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its ClinicalTrials.gov identifier: NCT01435733

Contacts
Contact: Lidia Gabis, MD +972-3-5302236 lidia.gabis@sheba.health.gov.il

Locations
Israel
Weinberg Child Development Center, Sheba Medical Center, Tel-Hashomer Recruiting
Ramat Gan, Israel
Sponsors and Collaborators
Sheba Medical Center
Investigators
Principal Investigator: Lidia Gabis, MD Sheba Medical Center
Principal Investigator: Gilad Gal, Ph.D Tel Aviv-Yafo Academic College
Study Director: Klara Zislin, BA Sheba Medical Center
  More Information

No publications provided

Responsible Party: Sheba Medical Center
ClinicalTrials.gov Identifier: NCT01435733     History of Changes
Other Study ID Numbers: SHEBA-11-8552-LG-CTIL
Study First Received: September 15, 2011
Last Updated: July 17, 2014
Health Authority: Israel: Ministry of Health

Keywords provided by Sheba Medical Center:
ASD
Divorce

Additional relevant MeSH terms:
Autistic Disorder
Child Development Disorders, Pervasive
Mental Disorders Diagnosed in Childhood
Mental Disorders

ClinicalTrials.gov processed this record on September 14, 2014