The Quality Of Life Of Cerebral Palsy Child Carers

This study has been completed.
Sponsor:
Information provided by:
Centro de Estudos Superiores de Maceio
ClinicalTrials.gov Identifier:
NCT00941226
First received: July 16, 2009
Last updated: July 17, 2009
Last verified: July 2009
  Purpose

Cerebral Palsy (CP) is characterized by a sensory-motor deficiency, involving disturbance of muscle tone, posture and voluntary movement. Children who are afflicted need special intense care for their carers


Condition
Cerebral Palsy

Study Type: Observational
Study Design: Observational Model: Cohort
Time Perspective: Prospective
Official Title: Evaluation of the Quality of Life of Cerebral Palsy Child Carers

Resource links provided by NLM:


Further study details as provided by Centro de Estudos Superiores de Maceio:

Enrollment: 1
Study Start Date: October 2007
Study Completion Date: December 2008
Primary Completion Date: March 2008 (Final data collection date for primary outcome measure)
Groups/Cohorts
Cerebral Palsy
Those kids who have cerebral palsy and are helped by carers

Detailed Description:

INTRODUCTION: Cerebral Palsy (CP) is characterized by a sensory-motor deficiency, involving disturbance of muscle tone, posture and voluntary movement. Children who are afflicted need special intense care for their carers. OBJECTIVE: The objective of this study was to analyze the quality of life of CP child carers attended in the physiotherapy sector of a philanthropic institution on Maceió - AL. METHODS: 62 carers were assessed in the period from the 18th to the 29th of February 2008, in which 96.7% were female carers and 3.7% male. The form for the collection of data from the carers, elaborated by the researchers and the WHOQOL-26 quality of life questionnaire were utilized as as instruments.

  Eligibility

Ages Eligible for Study:   2 Years and older
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population

CP child carers attended in the physiotherapy sector of a philanthropic institution on Maceió - AL

Criteria

Inclusion Criteria:

  • Children who were attended by Associação dos Pais e Amigos dos Excepcionais (APAE), Maceió, Alagoas
  • They had cerebral palsy

Exclusion Criteria:

  • Child who had not cerebral palsy
  • Child under 2 years old
  Contacts and Locations
Please refer to this study by its ClinicalTrials.gov identifier: NCT00941226

Sponsors and Collaborators
Centro de Estudos Superiores de Maceio
Investigators
Principal Investigator: Thâmara C. R. B. Calado, Graduated Centro de Estudos Superiores de Maceio
  More Information

No publications provided

Responsible Party: Thâmara Camylla Ribeiro de Barros Calado, Centro de Estudos Superiores de Maceió - CESMAC.
ClinicalTrials.gov Identifier: NCT00941226     History of Changes
Other Study ID Numbers: 340/07
Study First Received: July 16, 2009
Last Updated: July 17, 2009
Health Authority: Brazil: National Committee of Ethics in Research

Keywords provided by Centro de Estudos Superiores de Maceio:
Cerebral Palsy
Caregivers
Quality of Life

Additional relevant MeSH terms:
Cerebral Palsy
Paralysis
Brain Damage, Chronic
Brain Diseases
Central Nervous System Diseases
Nervous System Diseases
Neurologic Manifestations
Signs and Symptoms

ClinicalTrials.gov processed this record on April 17, 2014