The Quality Of Life Of Cerebral Palsy Child Carers

This study has been completed.

Sponsor:

Information provided by:

Centro de Estudos Superiores de Maceio

ClinicalTrials.gov Identifier:

NCT00941226

First received: July 16, 2009

Last updated: July 17, 2009

Last verified: July 2009

History of Changes

Purpose

Cerebral Palsy (CP) is characterized by a sensory-motor deficiency, involving disturbance of muscle tone, posture and voluntary movement. Children who are afflicted need special intense care for their carers

Condition
Cerebral Palsy

Study Type:	Observational
Study Design:	Observational Model: Cohort Time Perspective: Prospective
Official Title:	Evaluation of the Quality of Life of Cerebral Palsy Child Carers

Resource links provided by NLM:

MedlinePlus related topics: Caregivers Cerebral Palsy Paralysis

U.S. FDA Resources

Further study details as provided by Centro de Estudos Superiores de Maceio:

Enrollment:	1
Study Start Date:	October 2007
Study Completion Date:	December 2008
Primary Completion Date:	March 2008 (Final data collection date for primary outcome measure)

Groups/Cohorts
Cerebral Palsy Those kids who have cerebral palsy and are helped by carers

Detailed Description:

INTRODUCTION: Cerebral Palsy (CP) is characterized by a sensory-motor deficiency, involving disturbance of muscle tone, posture and voluntary movement. Children who are afflicted need special intense care for their carers. OBJECTIVE: The objective of this study was to analyze the quality of life of CP child carers attended in the physiotherapy sector of a philanthropic institution on Maceió - AL. METHODS: 62 carers were assessed in the period from the 18th to the 29th of February 2008, in which 96.7% were female carers and 3.7% male. The form for the collection of data from the carers, elaborated by the researchers and the WHOQOL-26 quality of life questionnaire were utilized as as instruments.

Eligibility

Ages Eligible for Study:	2 Years and older
Accepts Healthy Volunteers:	No
Sampling Method:	Non-Probability Sample

Study Population

CP child carers attended in the physiotherapy sector of a philanthropic institution on Maceió - AL

Criteria

Inclusion Criteria:

Children who were attended by Associação dos Pais e Amigos dos Excepcionais (APAE), Maceió, Alagoas
They had cerebral palsy

Exclusion Criteria:

Child who had not cerebral palsy
Child under 2 years old

Contacts and Locations

Please refer to this study by its ClinicalTrials.gov identifier: NCT00941226

Sponsors and Collaborators

Centro de Estudos Superiores de Maceio

Investigators

Principal Investigator:

Thâmara C. R. B. Calado, Graduated

Centro de Estudos Superiores de Maceio

More Information

No publications provided

Responsible Party:	Thâmara Camylla Ribeiro de Barros Calado, Centro de Estudos Superiores de Maceió - CESMAC.
ClinicalTrials.gov Identifier:	NCT00941226 History of Changes
Other Study ID Numbers:	340/07
Study First Received:	July 16, 2009
Last Updated:	July 17, 2009
Health Authority:	Brazil: National Committee of Ethics in Research

Keywords provided by Centro de Estudos Superiores de Maceio:

Cerebral Palsy
Caregivers
Quality of Life

Additional relevant MeSH terms:

Cerebral Palsy
Paralysis
Brain Damage, Chronic
Brain Diseases

Central Nervous System Diseases
Nervous System Diseases
Neurologic Manifestations
Signs and Symptoms

ClinicalTrials.gov processed this record on May 19, 2013

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