The Quality Of Life Of Cerebral Palsy Child Carers

This study has been completed.
Sponsor:
Information provided by:
Centro de Estudos Superiores de Maceio
ClinicalTrials.gov Identifier:
NCT00941226
First received: July 16, 2009
Last updated: July 17, 2009
Last verified: July 2009
  Purpose

Cerebral Palsy (CP) is characterized by a sensory-motor deficiency, involving disturbance of muscle tone, posture and voluntary movement. Children who are afflicted need special intense care for their carers


Condition
Cerebral Palsy

Study Type: Observational
Study Design: Observational Model: Cohort
Time Perspective: Prospective
Official Title: Evaluation of the Quality of Life of Cerebral Palsy Child Carers

Resource links provided by NLM:


Further study details as provided by Centro de Estudos Superiores de Maceio:

Enrollment: 1
Study Start Date: October 2007
Study Completion Date: December 2008
Primary Completion Date: March 2008 (Final data collection date for primary outcome measure)
Groups/Cohorts
Cerebral Palsy
Those kids who have cerebral palsy and are helped by carers

Detailed Description:

INTRODUCTION: Cerebral Palsy (CP) is characterized by a sensory-motor deficiency, involving disturbance of muscle tone, posture and voluntary movement. Children who are afflicted need special intense care for their carers. OBJECTIVE: The objective of this study was to analyze the quality of life of CP child carers attended in the physiotherapy sector of a philanthropic institution on Maceió - AL. METHODS: 62 carers were assessed in the period from the 18th to the 29th of February 2008, in which 96.7% were female carers and 3.7% male. The form for the collection of data from the carers, elaborated by the researchers and the WHOQOL-26 quality of life questionnaire were utilized as as instruments.

  Eligibility

Ages Eligible for Study:   2 Years and older
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population

CP child carers attended in the physiotherapy sector of a philanthropic institution on Maceió - AL

Criteria

Inclusion Criteria:

  • Children who were attended by Associação dos Pais e Amigos dos Excepcionais (APAE), Maceió, Alagoas
  • They had cerebral palsy

Exclusion Criteria:

  • Child who had not cerebral palsy
  • Child under 2 years old
  Contacts and Locations
Choosing to participate in a study is an important personal decision. Talk with your doctor and family members or friends about deciding to join a study. To learn more about this study, you or your doctor may contact the study research staff using the Contacts provided below. For general information, see Learn About Clinical Studies.

Please refer to this study by its ClinicalTrials.gov identifier: NCT00941226

Sponsors and Collaborators
Centro de Estudos Superiores de Maceio
Investigators
Principal Investigator: Thâmara C. R. B. Calado, Graduated Centro de Estudos Superiores de Maceio
  More Information

No publications provided

Responsible Party: Thâmara Camylla Ribeiro de Barros Calado, Centro de Estudos Superiores de Maceió - CESMAC.
ClinicalTrials.gov Identifier: NCT00941226     History of Changes
Other Study ID Numbers: 340/07
Study First Received: July 16, 2009
Last Updated: July 17, 2009
Health Authority: Brazil: National Committee of Ethics in Research

Keywords provided by Centro de Estudos Superiores de Maceio:
Cerebral Palsy
Caregivers
Quality of Life

Additional relevant MeSH terms:
Cerebral Palsy
Paralysis
Brain Damage, Chronic
Brain Diseases
Central Nervous System Diseases
Nervous System Diseases
Neurologic Manifestations
Signs and Symptoms

ClinicalTrials.gov processed this record on July 22, 2014