Alopecia Areata Registry (NAAR)
Alopecia areata is the loss of hair in patches that can proceed to loss of all hair (alopecia totalis or universalis). The purpose of the registry is to collect patient information and blood samples from people with alopecia areata.
Autoimmune Hair Loss
|Study Design:||Observational Model: Case Control
Time Perspective: Prospective
|Official Title:||Alopecia Areata Registry and Immunogenetic Mechanisms|
- Alopecia Areata Registry [ Time Frame: Registration on-going ] [ Designated as safety issue: No ]Database registration of participants via collection of participant epidemiology data.
Biospecimen Retention: Samples With DNA
DNA will be analyzed to learn the link between gene markers of traites of alopecia areata. Sera will be used to analyse cytokins. Lymphocytes will be used for the creation of B-cell lines.
|Study Start Date:||November 2001|
|Estimated Study Completion Date:||November 2099|
|Estimated Primary Completion Date:||November 2099 (Final data collection date for primary outcome measure)|
Alopecia areata is a condition in which hair is lost either from part of the scalp, all of the scalp, or the entire body, and it affects 1% to 2% of the population. It is thought to be an autoimmune disease and in some cases the disease is hereditary. The Alopecia Areata Registry will collect information and blood samples from clinically well-characterized patients with these three forms of alopecia areata: alopecia partialis (patchy loss of the scalp hair), alopecia totalis (total loss of all scalp hair), and alopecia universalis (complete loss of all hair everywhere on the body). This will be a collection of patients in multi-generational families, twins, single patients with patchy, persistent transient alopecia areata or long-standing alopecia totalis/universalis and with controls (persons unaffected and not related to alopecia patients). Information from these patients will be used to search the human genome for disease-associated loci and/or genes. Researchers interested in doing pathophysiology or treatment studies of this disease will also be able to contact patients having the appropriate form of the disease for the studies in question.
Patients who have been diagnosed with alopecia areata by a dermatologist will be eligible for the registry. Patients will fill out an information form online (alopeciaareataregistry.org). Patients who have a family history or specific types of alopecia will be invited to participate in a more detailed questionnaire and physical exam and have blood samples drawn.
|Contact: Alopecia Areata Registry Patient Recruitmentfirstname.lastname@example.org|
|Contact: Alopecia Areata Registry Toll Free Number||1-866-837-1050|
|United States, California|
|University of California, San Francisco||Recruiting|
|San Francisco, California, United States, 94143|
|Contact: Charles Chiang, MD 415-353-4333|
|Sub-Investigator: Vera Price, MD|
|United States, Colorado|
|University of Colorado - UCHSC - Health Science Center at Fitzsimons||Recruiting|
|Aurora, Colorado, United States, 80010-7163|
|Contact: Lisa Maestas 303-724-4032 Lisa.Maestas@uchsc.edu|
|Sub-Investigator: David Norris, MD|
|United States, Minnesota|
|University of Minnesota||Recruiting|
|Minneapolis, Minnesota, United States, 55455|
|Contact: Chelsy Jungbluth 612-625-9338|
|Sub-Investigator: Maria Hordinsky, MD|
|United States, New York|
|New York, New York, United States, 10032|
|Contact: Carol Coppola, RN 212-305-6953 email@example.com|
|Sub-Investigator: Angela Christiano, PhD|
|United States, Texas|
|M.D. Anderson Cancer Center||Recruiting|
|Houston, Texas, United States, 77030|
|Contact: Joyce Osei, MPH, MHA 713-794-1442 firstname.lastname@example.org|
|Principal Investigator: Madeleine Duvic, MD|
|Principal Investigator:||Madeleine Duvic, MD||M.D. Anderson Cancer Center|