Now Available for Public Comment: Notice of Proposed Rulemaking (NPRM) for FDAAA 801 and NIH Draft Reporting Policy for NIH-Funded Trials
20 studies found for:    Craniosynostosis
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Rank Status Study
1 Recruiting Qualitative and Quantitative Study Which Aims to Determine the Specifics of the Announcement for the Diagnosis of Patients With Craniosynostosis and Their Parents to Better Support Them in Their Care
Condition: Craniosynostosis
Interventions: Other: qualitative survey;   Other: quantitative survey
2 Completed Genetic Analysis of Craniosynostosis, Philadelphia Type
Conditions: Craniosynostosis;   Philadelphia Type Craniosynostosis
Intervention:
3 Not yet recruiting The Efficacy and Population Pharmacokinetics of Tranexamic Acid for Craniosynostosis Surgery
Condition: Craniosynostosis
Interventions: Drug: high dose TXA;   Drug: Low dose TXA
4 Withdrawn Endoscopic Treatment for Isolated, Single Suture Craniosynostosis
Condition: Craniosynostosis
Intervention: Procedure: Endoscopic strip craniectomy
5 Recruiting Osteogenic Profiling of Tissue From Children With Craniosynostosis
Condition: Craniosynostosis
Intervention: Other: biopsy
6 Recruiting Clinical Study of Muenke Syndrome (FGFR3-Related Craniosynostosis)
Conditions: Craniosynostosis;   Muenke Syndrome
Intervention:
7 Recruiting MRI for Non-invasive Evaluation of Brain Stress
Condition: Craniosynostosis
Intervention: Other: MR scan
8 Not yet recruiting The Effect of Gender on the Consumption of Pain Medication in Infants Undergoing Craniosynostosis Repair or Untethering of Cord in ITU
Conditions: Craniosynostosis Repair;   Untethering of Cord
Intervention:
9 Recruiting Blood Loss and Transfusion Requirement in Infants Treated With Tranexamic Acid
Condition: Craniosynostoses
Interventions: Drug: Tranexamic Acid;   Drug: Saline Placebo
10 Recruiting Effect of Tranexamic Acid Based on Pharmacokinetics in Pediatric Patients Undergoing Craniosynostosis Surgery: Randomized Controlled Trial
Condition: Craniosynostosis Patients Undergoing Distraction Osteotomy
Interventions: Drug: Tranexamic Acid;   Drug: normal saline
11 Completed Nautilus: Dynamic Craniotomy; New Surgical Technique and Preliminary Results
Condition: Children With Craniosynostoses
Intervention: Procedure: dynamic craniotomy
12 Active, not recruiting Child and Infant Learning Project
Condition: Craniosynostosis
Intervention: Behavioral: neurobehavioral development
13 Withdrawn Comparison of Allogenix Plus Demineralized Bone Matrix and Autogenous Bone Dust Versus Autogenous Bone Dust Alone in Ossification of Small Calvarial Defects, a Pilot Study.
Condition: Metopic Craniosynostosis
Intervention: Biological: Allogenix Plus
14 Enrolling by invitation Efficacy of Amicar for Children Having Craniofacial Surgery
Condition: Craniosynostosis
Interventions: Drug: Amicar (ε-aminocaproic acid);   Drug: normal saline
15 Terminated Tranexamic Acid for Craniofacial Surgery
Condition: Cranial Vault Surgery for Craniosynostosis
Interventions: Drug: Tranexamic acid;   Drug: saline
16 Completed Amicar Pharmacokinetics of Children Having Craniofacial Surgery
Condition: Craniosynostosis
Intervention: Drug: Epsilon-Aminocaproic Acid
17 Completed Genetic Analysis of Craniofrontonasal Syndrome
Conditions: Craniofrontonasal Syndrome;   CFNS
Intervention:
18 Completed Combination Chemotherapy and Peripheral Stem Cell Transplantation in Treating Patients With Neuroblastoma
Condition: Neuroblastoma
Interventions: Biological: filgrastim;   Drug: carboplatin;   Drug: cisplatin;   Drug: cyclophosphamide;   Drug: doxorubicin hydrochloride;   Drug: etoposide;   Drug: isotretinoin;   Drug: melphalan;   Drug: topotecan hydrochloride;   Drug: vincristine sulfate;   Procedure: autologous bone marrow transplantation;   Procedure: bone marrow ablation with stem cell support;   Procedure: conventional surgery;   Procedure: peripheral blood stem cell transplantation;   Radiation: radiation therapy
19 Enrolling by invitation Detection and Quantification of Neonatal Intraventricular Hemorrhage
Condition: Intraventricular Brain Hemorrhage
Intervention:
20 Active, not recruiting National Registry of Genetically Triggered Thoracic Aortic Aneurysms and Cardiovascular Conditions
Conditions: Marfan Syndrome;   Turner Syndrome;   Ehlers-Danlos Syndrome;   Loeys-Dietz Syndrome;   FBN1, TGFBR1, TGFBR2, ACTA2 or MYH11 Genetic Mutation;   Bicuspid Aortic Valve Without Known Family History;   Bicuspid Aortic Valve With Family History;   Bicuspid Aortic Valve With Coarctation;   Familial Thoracic Aortic Aneurysm and Dissections;   Shprintzen-Goldberg Syndrome;   Other Aneur/Diss of Thoracic Aorta Not Due to Trauma, <50yo;   Other Congenital Heart Disease
Intervention:

Indicates status has not been verified in more than two years