720 studies found for:    Open Studies | "Personal Health Records"
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Rank Status Study
21 Recruiting CARNet : Self-Monitoring and Co-driving in Rheumatology With Internet : Rheumatoid Arthritis Cohort (Usual Care Study)
Condition: Rheumatoid Arthritis
Intervention: Other: SANOIA Website
22 Recruiting Assessment of Antibodies and Inflammatory Markers in Postural Tachycardia Syndrome
Condition: Postural Orthostatic Tachycardia Syndrome
Interventions: Other: History;   Other: Physical;   Other: blood draw;   Behavioral: Questionnaires
23 Recruiting The Natural History of Metachromatic Leukodystrophy
Condition: Metachromatic Leukodystrophy
Intervention:
24 Recruiting A Natural History Study of the Gangliosidoses
Conditions: Tay Sachs Disease;   Sandhoff Disease;   Late Onset Tay Sachs Disease
Intervention:
25 Recruiting Radiation Therapy and the Natural History of Childhood Cancers
Condition: Neoplasms
Intervention:
26 Recruiting The Natural History of Solid Organ Cancer Stem Cells (SOCSC)
Conditions: Hepatic Cancer;   Pancreatic Ductal Cancer;   Colorectal Cancer;   Breast Cancer;   Gastric Cancer
Intervention:
27 Recruiting Kidney Cancer DNA Registry
Condition: Renal Cancer
Interventions: Other: salvia for germline DNA;   Behavioral: the Kidney Cancer Questionnaire;   Behavioral: Family History Questionnaire (when applicable)
28 Recruiting Epidemiology, Infectivity and Natural History of Hepatitis C Virus Infection
Condition: Hepatitis C
Intervention:
29 Recruiting Natural History of Cytomegalovirus (CMV) Infection and Disease Among Renal Transplant Recipients
Condition: Infection in Solid Organ Transplant Recipients
Intervention:
30 Recruiting A Prospective Natural History Study of Patients With Syringomyelia
Conditions: Syringomyelia;   Arnold Chiari Deformity
Intervention:
31 Recruiting The Natural History of Wheat Hypersensitivity in Thai Children
Conditions: Wheat Allergy;   Child
Intervention: Dietary Supplement: oral wheat challenge
32 Recruiting The Natural History of Graft-Versus-Host Disease in the Eyes
Condition: Graft-Versus-Host Disease
Intervention:
33 Recruiting A Natural History Study of Molybdenum Cofactor and Isolated Sulfite Oxidase Deficiencies
Condition: Molybdenum Cofactor and Isolated Sulfite Oxidase Deficiencies
Intervention: Other: No treatment
34 Recruiting Natural History of Anthrax: a Study of Primary Infected, Recovered, and Exposed Individuals (SPoRE); and Evaluation of AVA-Vaccinated Recipients
Condition: Anthrax
Intervention:
35 Unknown  Endothelial Dysfunction in Subjects With History of Premature Coronary Artery Disease
Condition: Coronary Heart Disease
Intervention: Drug: Atorvastatin
36 Not yet recruiting Clinical History Taking Versus the Addition of an Electronic File Consultation in Pediatric Pre-operative Assessments
Condition: Anesthesia
Intervention:
37 Recruiting Hereditary Inclusion Body Myopathy-Disease Monitoring (HIBM-DMP): A Combined Registry and Prospective Observational Natural History Study to Assess HIBM Disease
Conditions: Hereditary Inclusion Body Myopathy;   GNE Myopathy;   Nonaka Disease;   Quadriceps Sparing Myopathy (QSM);   Distal Myopathy With Rimmed Vacuoles (DMRV)
Intervention:
38 Recruiting Study of Quality of Life in Freeman-Sheldon Syndrome and Related Conditions
Conditions: Arthrogryposis;   Craniofacial Abnormalities;   Posttraumatic Stress Disorder;   Depressive Disorder
Interventions: Other: PTSD Checklist-Specific;   Other: Modified Flanagan Quality of Life Scale;   Other: Center for Epidemiologic Studies Depression Scale;   Other: Functional Enquiry Form;   Other: Strength, Joint ROM, Girth and Length Measurements;   Other: Study Physical Examination;   Other: PTSD, Depression, and FSS-Focused Examination;   Other: Freeman-Sheldon Specific Quality of Life Survey;   Other: Lactate, Glucose, and Adenosine Triphosphate Blood Levels
39 Recruiting Study of Resting and Exercising Body Functioning in Freeman-Sheldon Syndrome and Related Conditions
Conditions: Arthrogryposis;   Craniofacial Abnormalities
Interventions: Other: Lactate, Glucose, and Adenosine Triphosphate Blood Levels;   Procedure: Physiological Stress Test;   Other: Functional Enquiry Form;   Other: Strength, Joint ROM, Girth and Length Measurements;   Other: Study Physical Examination;   Other: Observational Gait Analysis;   Other: Mental Health Interview
40 Unknown  Acute Respiratory Infection Consortium
Condition: Influenza
Intervention:

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Indicates status has not been verified in more than two years