Now Available for Public Comment: Notice of Proposed Rulemaking (NPRM) for FDAAA 801 and NIH Draft Reporting Policy for NIH-Funded Trials
748 studies found for:    Open Studies | "Personal Health Records"
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Rank Status Study
21 Not yet recruiting Falls Of Unknown Origin (FUKNO) - Are Morbidity and Mortality Predictable in Patients Presenting With Falls?
Conditions: Accidental Falls;   Underlying Disease of Falls
Intervention: Other: Patients History
22 Recruiting Modifiers of Disease Severity in Cerebral Cavernous Malformations
Conditions: Cavernous Angioma, Familial;   Cerebral Cavernous Malformations;   Cerebral Cavernous Hemangioma
Intervention: Other: Natural history data collection
23 Recruiting CARNet : Self-Monitoring and Co-driving in Rheumatology With Internet : Rheumatoid Arthritis Cohort (Usual Care Study)
Condition: Rheumatoid Arthritis
Intervention: Other: SANOIA Website
24 Recruiting Survey Study and Records Review of Treatment Outcomes in Freeman-Sheldon Syndrome
Conditions: Arthrogryposis;   Craniofacial Abnormalities
Interventions: Other: STOP-FSS Survey;   Other: Medical Records Review
25 Recruiting The Natural History of Metachromatic Leukodystrophy
Condition: Metachromatic Leukodystrophy
Intervention:
26 Recruiting Natural History Study of Patients With Hypophosphatasia (HPP)
Condition: Hypophosphatasia
Intervention:
27 Recruiting A Natural History Study of the Gangliosidoses
Conditions: Tay Sachs Disease;   Sandhoff Disease;   Late Onset Tay Sachs Disease
Intervention:
28 Recruiting The Natural History of Solid Organ Cancer Stem Cells (SOCSC)
Conditions: Hepatic Cancer;   Pancreatic Ductal Cancer;   Colorectal Cancer;   Breast Cancer;   Gastric Cancer
Intervention:
29 Recruiting The Natural History of Graft-Versus-Host Disease in the Eyes
Condition: Graft-Versus-Host Disease
Intervention:
30 Recruiting Natural History of Cytomegalovirus (CMV) Infection and Disease Among Renal Transplant Recipients
Condition: Infection in Solid Organ Transplant Recipients
Intervention:
31 Recruiting Assessment of Antibodies and Inflammatory Markers in Postural Tachycardia Syndrome
Condition: Postural Orthostatic Tachycardia Syndrome
Interventions: Other: History;   Other: Physical;   Other: blood draw;   Behavioral: Questionnaires
32 Recruiting The Natural History of Wheat Hypersensitivity in Thai Children
Conditions: Wheat Allergy;   Child
Intervention: Dietary Supplement: oral wheat challenge
33 Recruiting Radiation Therapy and the Natural History of Childhood Cancers
Conditions: Cancer;   Childhood Malignancy
Intervention:
34 Recruiting A Prospective Natural History Study of Patients With Syringomyelia
Conditions: Syringomyelia;   Arnold Chiari Deformity
Intervention:
35 Recruiting A Natural History Study of Molybdenum Cofactor and Isolated Sulfite Oxidase Deficiencies
Conditions: Molybdenum Cofactor Deficiency;   Isolated Sulfite Oxidase Deficiency
Intervention:
36 Recruiting Natural History of Anthrax: a Study of Primary Infected, Recovered, and Exposed Individuals (SPoRE); and Evaluation of AVA-Vaccinated Recipients
Condition: Anthrax
Intervention:
37 Recruiting Acid Suppressive Therapy - Review of Appropriateness
Condition: Appropriate Startup of Acid Suppressive Therapy
Interventions: Other: Record review;   Other: AST-history
38 Unknown  Hypercalciuria and Calcium Stone Disease in Caucasian Patients
Conditions: Hypercalciuria;   Calcium Stone Disease
Interventions: Radiation: Radiological testing;   Genetic: Pediatric Urologic DNA and History Repository
39 Recruiting Kidney Cancer DNA Registry
Condition: Renal Cancer
Interventions: Other: salvia for germline DNA;   Behavioral: the Kidney Cancer Questionnaire;   Behavioral: Family History Questionnaire (when applicable)
40 Not yet recruiting Clinical History Taking Versus the Addition of an Electronic File Consultation in Pediatric Pre-operative Assessments
Condition: Anesthesia
Intervention:

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